Did you know that over 6 million Americans are currently suffering with Alzheimer’s Disease and Dementia? Sadly, medications have been largely ineffective in clinical trials leaving little hope for those affected once the diagnosis is made.
Happy Mother’s Day. One most of my Mother’s Days with you, you woke up to flowers on the table from Dad, and frustration about how Dad was off to his Sunday band practice. You’d say, “don’t those band members have mothers that they want to celebrate?” You laughed it off because you knew that you would get to spend the day with your children.
YES! hosted its inaugural Care Partner Wellness Retreat in April, which gave those caring for loved ones affected by young-onset dementia (YOD) a time and space to step out of that role, slow down, and breathe. Fourteen care partners were welcomed by the YES! facilitators at Bon Secours Retreat Center in Marriottsville, MD.
The Young-onset Education and Support (YES) organization was invited to participate in a panel on February 22, 2023, for the University of Maryland School of Pharmacy student body to address medication management and concerns for those diagnosed with young-onset dementias (diagnosed under 65 years old).
The winter storm of 2016, a loving husband, father, and grandfather would normally be looking forward to working storm duty for BGE. He loved meeting and working with people he never would have met, if not for doing extra work during storms of any kind.
If you asked me about how my life has been the last few years, many people would expect me to say that it’s been phenomenal. I got my master’s degree, had great opportunities at work, got my clinical license, married my boyfriend of 8 years, and adopted the very best dog.
A diagnosis of Alzheimer’s/dementia can be a devastating change in a person and their family’s life. Adjusting to new life can seem terrifying. In my experience, it was.
My dad was/is a hard working man who grew up in a blue collar family with four siblings. He worked his tail off to build a good life for me, my brother, sister, and our mom
If you asked me 5 years ago, what are you afraid of most? My answer would be losing someone to dementia. I could not wrap my head around someone I love losing their memory and suffering through such a debilitating disease. Little did I know, my life would change drastically in the following few years.
In honor of Father’s Day, two adult children of parents affected by YOD Alzheimer’s share letters to their dads.
On November 28, 2016, I lost my wonderful husband Ron after his (our) 10-year journey with dementia. He was 67 years old and had been diagnosed in his mid-50’s. I knew something was not “right” long before the official diagnosis, and I chalked it up to work stress!
Ron and I met and married in our early 40’s. We had many dreams and quite a long bucket list. We learned through life experiences that we needed to get started on our dreams. First, we bought a house, then Ron bought me my DREAM car, a green Jaguar.
No one expects their life to be turned upside-down by a dementia diagnosis, but that is exactly what happened to us. At the tender age of 49, my husband Dave, who is my partner in all things and the father of three, was diagnosed with Primary Progressive Aphasia.
Mary Jones reflects on the loss of her husband Bill Jones, Alzheimer’s disease with Lewy Body
The slow loss of so much…little by little
For me, many of these were lost long before November 5, 2019
My husband, Robert Baumler, passed away in 2018 at the age of 63 due to complications from Lewy Body Dementia. His death was accelerated due, in part, to medication errors by physicians who do not understand the disease.
Evie Vander Meer’s journey with her husband Mark was featured in the Frederick Magazine by Guy Fletcher in 2019. The story leads the reader through how young-onset Alzheimer’s disease upended life for Mark and Evie Vander Meer, the long process of getting a diagnosis, and the lack of treatment options.
Our mission is to provide education and support for families affected by young onset dementia.
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