This video shows Shara’s daughter, Audra, and husband, Scott, recounting their experience with Shara’s initial diagnosis and the progression of the disease. Shara was able to participate in a clinical trial, which was fortunately open to those the age of 50 and over.
The third annual YES! Care Partner Wellness Retreat was held June7-8 at the serene Bon Secours Retreat Center in Marriottsville, MD, welcoming 22 dedicated care partners for a restorative overnight experience. Designed specifically for those caring for loved ones with young-onset dementia (YOD), the retreat offered a rare opportunity to step out of the caregiving role, slow down, and simply breathe.
Some of the most difficult and heart wrenching decisions to make when facing the progression of young-onset dementia (YOD) in a loved one are if, when, and how to consider additional levels of care as an option. A diagnosis of YOD is immediately overwhelming, which is why so many of us put off the harder questions until the reality of what is to come sinks in.
Author Richie Freiman published his book, The Optimistics, this past summer, a powerful account of three men in their 50s diagnosed with young-onset dementia who formed their own club—complete with matching t-shirts. He connected with these men with the help of the young-onset dementia (YOD) support group facilitated by YES! in partnership with the Alzheimer’s Association.
A recent article on the website Nature highlights the evolving ways that researchers are finding to diagnose Alzheimer’s and related diseases. This article in particular talks about the promise that blood tests have on earlier diagnosis and potentially treatment as well. It shows the impact these tests can have on a real-life situation using the story of a YES! support group participant named Daryl.
Read the full story here: Reading the signs of dementia
The second annual YES! Care Partner Wellness Retreat was held April 20-21, which gave those caring for loved ones affected by young-onset dementia (YOD) a time and space to step out of that role, slow down, and breathe. Twenty-two care partners were welcomed by the YES! facilitators at Bon Secours Retreat Center in Marriottsville, MD for the second year in a row.
On April 6, 2024, members of the YES! network came together at the Alzheimer Association Greater Maryland Chapter Memory Ball in Baltimore to support YES! Board Chair Shannon Hammond who performed as a dancer. All proceeds from this event fund supportive services of the Alzheimer’s Association and critical research for a cure. This year was especially meaningful because YES! Board Chair Shannon Hammond was performing to shine a light on younger-onset dementias.
YES! is thrilled to have our Board President Shannon Hammond dancing at the Alzheimer’s Association Memory Ball on April 6, 2024.
Shannon is knowledgeable in many aspects of dementia, working in elder law for years. When Lewy Body dementia struck too close in 2014, it opened her eyes even more. Her mother’s diagnosis spurred her to be an advocate and resource for others on similar journeys.
I was around 11 years old when my dad was diagnosed with Younger-Onset Alzheimer’s in 2020. I was aware he was changing in some ways a year before his diagnosis; however, I did not know why. I could also tell something was different, but this wasn’t confirmed until my mother told me about his diagnosis later in the year. In that moment, I was confused. I didn’t know what to think or even how I should have felt. I wasn’t knowledgeable on exactly what Alzheimer’s was; however, I knew the gist of what was going to happen – he was going to lose his memories.
Did you know that over 6 million Americans are currently suffering with Alzheimer’s Disease and Dementia? Sadly, medications have been largely ineffective in clinical trials leaving little hope for those affected once the diagnosis is made.
Happy Mother’s Day. One most of my Mother’s Days with you, you woke up to flowers on the table from Dad, and frustration about how Dad was off to his Sunday band practice. You’d say, “don’t those band members have mothers that they want to celebrate?” You laughed it off because you knew that you would get to spend the day with your children.
YES! hosted its inaugural Care Partner Wellness Retreat in April, which gave those caring for loved ones affected by young-onset dementia (YOD) a time and space to step out of that role, slow down, and breathe. Fourteen care partners were welcomed by the YES! facilitators at Bon Secours Retreat Center in Marriottsville, MD.
The Young-onset Education and Support (YES) organization was invited to participate in a panel on February 22, 2023, for the University of Maryland School of Pharmacy student body to address medication management and concerns for those diagnosed with young-onset dementias (diagnosed under 65 years old).
The winter storm of 2016, a loving husband, father, and grandfather would normally be looking forward to working storm duty for BGE. He loved meeting and working with people he never would have met, if not for doing extra work during storms of any kind.
If you asked me about how my life has been the last few years, many people would expect me to say that it’s been phenomenal. I got my master’s degree, had great opportunities at work, got my clinical license, married my boyfriend of 8 years, and adopted the very best dog.
A diagnosis of Alzheimer’s/dementia can be a devastating change in a person and their family’s life. Adjusting to new life can seem terrifying. In my experience, it was.
My dad was/is a hard working man who grew up in a blue collar family with four siblings. He worked his tail off to build a good life for me, my brother, sister, and our mom
If you asked me 5 years ago, what are you afraid of most? My answer would be losing someone to dementia. I could not wrap my head around someone I love losing their memory and suffering through such a debilitating disease. Little did I know, my life would change drastically in the following few years.
In honor of Father’s Day, two adult children of parents affected by YOD Alzheimer’s share letters to their dads.
On November 28, 2016, I lost my wonderful husband Ron after his (our) 10-year journey with dementia. He was 67 years old and had been diagnosed in his mid-50’s. I knew something was not “right” long before the official diagnosis, and I chalked it up to work stress!
Ron and I met and married in our early 40’s. We had many dreams and quite a long bucket list. We learned through life experiences that we needed to get started on our dreams. First, we bought a house, then Ron bought me my DREAM car, a green Jaguar.
No one expects their life to be turned upside-down by a dementia diagnosis, but that is exactly what happened to us. At the tender age of 49, my husband Dave, who is my partner in all things and the father of three, was diagnosed with Primary Progressive Aphasia.
Mary Jones reflects on the loss of her husband Bill Jones, Alzheimer’s disease with Lewy Body
The slow loss of so much…little by little
For me, many of these were lost long before November 5, 2019
My husband, Robert Baumler, passed away in 2018 at the age of 63 due to complications from Lewy Body Dementia. His death was accelerated due, in part, to medication errors by physicians who do not understand the disease.
Evie Vander Meer’s journey with her husband Mark was featured in the Frederick Magazine by Guy Fletcher in 2019. The story leads the reader through how young-onset Alzheimer’s disease upended life for Mark and Evie Vander Meer, the long process of getting a diagnosis, and the lack of treatment options.
Our mission is to provide education and support for families affected by young onset dementia.
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