A diagnosis of Young-Onset Dementia (YOD) is a journey that starts well before diagnosis. This is a collection of information the aim of which is to help others move through their own unique journeys with this diagnosis. It is based on the experience of the YES! Board who have either lived through this experience, are experts in their field, or both. First, it is important to understand what Alzheimer’s is and what it looks like.
What is Alzheimer’s?
Getting a Diagnosis
Getting a diagnosis can be surprisingly difficult. In part due to family physicians being underinformed about the complex ways dementia can present, and also due to the fact that early symptoms of dementia are also symptoms of other illnesses like depression or anxiety.
There are several different options for care for a loved one, and the best choice for you is a very personal decision, based on many different factors. Below are resource pages that will help you interview and find the right caregiving option. Thank you to Absolute Companion Care for the documents.
An article explaining different levels of care, overview of care options and when to pursue care for a loved one.
Questions to ask a care facility
Questions to ask a residential services agency
Questions to ask a private care provider
End of Life
End of life stage comes with many difficult decisions and emotions. One that may come as a surprise is anticipatory grief. This may start well before the end of life stage, and is just as impactful as grief for someone who has already died. See the anticipatory grief page for more information.